What is ALSconnection?

ALSconnection is a patient driven registry to collect information on persons with ALS in North America. Any person who has been diagnosed with ALS by a physician can be part of this registry.

Why should I join ALSconnection?

By sharing your story, you can help researchers learn more about the disease, and identify opportunities to improve care for all ALS patients.

Please join hundreds of PALS who have contributed to this research effort by following these simple steps:

1.To begin, please register with ALS Connection.

2.As part of the registration process, you will be asked to read and electronically sign a consent form that further explains the study. If you have any questions about these forms please contact the coordinating site listed below.

3.Next, please fill out the questionnaires on the checklist.

If you have any questions about ALSconnection, please contact:
Stacey Champion at ChampiS@cpmcri.org or
Giovanna Kushner at kushneg@sutterhealth.org